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Useful and interesting links
- Whittemore-Peterson Institute
The Whittemore-Peterson Institute for Neuro-Immune Disease in Nevada, USA, have made a potential breakthrough and published their amazing findings in October, 2009. They found the XMRV retro-virus present in 95% of ME patients compared to under 4% of the general population. The Scheme is proud to say that our money is going towards replicating these findings in the UK as this discovery raises hopes of a treatment, albeit in years to come. It is still unclear whether XMRV is the cause of ME or is present as a piggy-back virus.
- Rosevibe
A cfs/ me information site designed specifically for people with sight difficulties (specifically those who have trouble focusing for too long on a white background and who prefer larger text. It includes information culled from publications and many of the larger sites, condensed in an easy to understand fashion for those unfamiliar with the illness.
- ME Free For All
ME Free For All.org is a organisation for all those with an interest in M.E. - sufferers, their carers, doctors & researchers - to come together. All may have access to the same information in the same place. The M.E. community has suffered from incomplete and mis information because of a combination of selective publication, censorship, exclusion of some readers, ignorance, mischief and even malevolence.
- CFS aktuell
An excellent German ME site.
- Chemical Free
The website that aims to make life more liveable for those affected by Multiple Chemical Sensitivity and Multiple Food Intolerance.
- CHRONICKÝ ÚNAVOVÝ SYNDROM
This is a ME site from The Czech Republic
- The Environmental Illness Resource
An information and community resource for sufferers of environmental illnesses such as chronic fatigue syndrome/ME, fibromyalgia, multiple chemical sensitivity, allergies and other related conditions. The site offers extensive illness and treatment information, latest news stories, latest research, article database, forums, and more. Founded by a long-term CFS/ME survivor who wishes to share important information with others on the same journey.
- Overton Studios Trust
A UK Registered Charity providing world-wide holistic healing and media production for sufferers from: Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), Post Viral Syndrome (PVS), Chronic Fatigue and Immune Deficiency Syndrome (CFIDS) and Fibromyalgia (FM)
- Invest in ME
We are an independent UK charity campaigning for bio-medical research into Myalgic Encephalomyelitis (M.E.), as defined by WHO-ICD-10-G93.3.
We have links nationwide and also internationally.
Our aim is to bring together like-minded individuals and groups to campaign for research and funding to establish an understanding of the Aetiology (causes), Pathogenesis (harmful effects) and Epidemiology (the pattern of distribution of a disease through a population) of M.E. This should lead to the development of a universal "Thumb-Print Test" that can confirm the presence of M.E. and, subsequently, medical treatments to cure or alleviate the effects of the illness.
The Vegepa for ME Scheme is not responsible for the privacy practices or the content of external internet sites
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